I'm sure you're wondering how my first chemo treatment went today. I made a long list of stuff to take in my chemo bag. I even brought along my work lunch bag for water and snacks in. I think people thought I was going to stay overnight. I had so much stuff! We checked in and I felt that the receptionist was extremely nice, knowing that I was having chemo today. Then I saw my clinical research nurse (I was randomized into the control group, by the way). She went over all the possible side effects of each medicine that I would be receiving. My oncologist, Dr. Chan, came in as well and checked my lungs and heart. We talked for a bit about how I felt being in the control group versus the one receiving Herceptin. To be honest, I was a little disappointed, but Tony is happy that I won't need an extra year of chemo. The bright side is I will receive very close monitoring and beyond excellent care.
Before I was taken into the chemo suite, my nurse had to double check the dosages on all of the medications. About ten minutes later, I was taken into the suite. It reminded me of the holding area before I go into surgery. Lots of semi-private areas with recliner chairs. I saw a few patients using those chairs. She asked me if I wanted a private room, which I gladly accepted. The private room is small with its own bathroom.
All of the procedures were explained to me once again. She poked the needle into my port and I didn't feel a thing, thanks to the numbing cream they gave me. Then she drew some blood to make sure that it worked properly. Sometimes, the port can rotate if it's been in for too long. I was given pre-meds, Zofran, Tylenol, and Decadron. It was now time for the Adriamycin. I tried not to freak out as the red liquid was going inside of my body. The next medicine, Cytoxan, was given on a drip and that took an hour. During that time, I bossed Tony around a bit. Can you take my shoes off? Get my blanket? Get my mentos? Get my Nook? Help me to the bathroom? Get my tissues and lunch bag? Recline my chair? He didn't like it very much.
Once the Cytoxan was done, I was free to go home. Woohoo! We had dinner at my mom's and are now relaxing at home. I felt a little tiny bit nauseated, so I took a Compazine over an Ativan. Dr. Chan said NOT to be a hero and he wanted me to take the meds as soon as I felt the least bit nauseated. But doc, I have a gene mutation, remember? I am the almighty Phoenix!
I was given 2 anti-nausea medicines and I threw away the instructions, so I had no idea which one caused less drowsiness. Thank goodness for Google. Ativan is used for depression and comes with a whole list of side effects. They both do, actually. Let's see how I feel tomorrow morning. Tony took tomorrow off, so he can "monitor" me. Tomorrow comes with a new set of challenges. Injecting myself with Neupogen to increase my white blood cells. $300 a pop, without insurance. Tune in.
Love,
Chinh
This is my port, right after she stuck a needle in it. |
Manual push of the Adriamycin |
Red Devil |
1st AC treatment, relaxing in my recliner |
You're hilarious! The last photo with commentary! :) Anyways, shop around with pharmacies, maybe some will cut you a deal, you never know. Call Chino Hills Professional Pharmacy and see if he has any cheaper rates - any little bit helps, it will add up! That red medicine is interesting - just think of it as fruit punch going up your port! Have a relaxing weekend!
ReplyDeleteHi Lisa! Because I am with Kaiser, I have to use their pharmacy. Fortunately, my copay was only $35 for 5 days of the Neupogen shots. Welcome back from your trip. You guys must be exhausted. I'm jealous though! It looked like you guys had a lot of fun up there. How was the flight for the kids?
ReplyDeleteGotcha! Thought you had to find it out of pocket for the Neupogen. Trip was great! It was a big mess though, and my own fault. My kids had an adventure! They had to go on a separate flight from me because they were required to have PASSPORTS to fly into Canada!! Argh... I misread that completely! They had passport CARDS. So Andy and my dad flew with them into Buffalo, NY, and drove across the border. I owe them lots for making them run and catch flights with two little kids! :) LOL... if you're allowed to, sometimes getting a cold bottle of water and applying it to the shot area helps to numb it, then it's not so bad. I hated shots at home :P
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